Monday, June 30, 2008

Atul update

Atul is 1 year 9 months now! Sigh! Time flies. It’s always hard for me to do this post but writing about him is a pleasure. I could write loads about him since he is my heart and my life, as of now, revolves around him absolutely. The sad part is that the daily physical therapy does not seem to help his physical development and now he is officially having CVI, seizures, hypotoned, and hearing impaired. In short he is my sweet little vegetable. We are working with the only sense that is left which is smell and with this he manages to fill our world with his cute smiles and babbles when he senses us near him. Adi’s smell seems to be the dearest as atul babbles non stop when Adi hovers around him like a mosquito. Right now Atul is on his fifth medication as he successfully overpowered the rest and emerged a winner. Seizures have become a part of his and our lives. Looks like it is here to stay with us. The docs consider his case grim, as they don't see much improvement (both motor and intellectual) since seizures have taken control of his brain and he is not responding to any medication. However he is still a happy, quiet, non-fussy child compared to the typical ones thus giving me lot of time to do other work which includes not having to hurry my lunch, not having to run out of the toilet unlike the clingy toddlers etc. There are times when I miss the typical toddler but when I see Adi getting into trouble, I relieve myself thinking that at least I don’t have to handle complaints in Atul’s case. As days pass by I realize that it's going to get tough on us physically but seeing him give that wholesome, blissful, charming smile will keep us going.

Many of my friends would like an update about Atul and I know they ask out of concern, but I do get uncomfortable talking about him so I prefer they rather not ask than see me in tears. I wish they all read about him here which could spare me the trouble of having to explain the same things over and over again to different people. Anyway I'll try my best to provide regular updates. Here is Atul’s latest video

5 comments:

Shantha said...

Such a cute Atul baby and god...such cute smile.YOu are right viddi.His smile can give you all the courage and strength .
I really admite my dear viddi's bubbly nature inspite of all these.
Lots to learn from her.Great going dear....
Cheers to u and Atul baby

DS said...

I have a tough time beleiving that smell is the only sense which works. He looks just fine(I have seen kids who has that look), and his smile is so cute and his hand movements are healthy. After seeing this video, I have total faith that something is going to turn around soon. Very nice video and I admire your spirit and attitude towards life!

Miss Stymie said...

@ds...hope you are right.

Stumped said...

Hey Viddi, Keep it coming babe.. WOuld like to get updates on Atul. He is soo cute. I totally agree with ds, that his vision, and his movemoments are of a healthy child. Try different doctors if the current ones are pulling ur spirits down. I am sure things will become better. Atul is blessed to have parents like u.. Keep faith.

Thanu said...

I love your attitude towards life Viddi.Atul looks a real darling.